Baby with fatal brain disorder ‘saved’ by anonymous $47K donation

A Florida baby who was given just weeks to live is thriving today — and it wouldn’t have been possible without the generosity of an anonymous donor who covered her medical bills.

When Bill and Meg Longhenry welcomed their second child, Millie, in August 2023, they were told she had no hope of survival due to a rare and severe congenital brain disorder called alobar holoprosencephaly (HPE).

HPE affects about one in 10,000 live births, and most infants do not survive beyond the first week, statistics show. Millie was born with the most severe form of the disease.

“We found out that she has a rare brain malformationwhere part of her brain didn’t develop, and the other part didn’t develop correctly,” Meg Longhenry said in an on-camera interview with Fox News Digital. 

“So there’s no division between the two hemispheres and the middle is hollow.”

Doctors told the parents that “Millie should have been a miscarriage or a stillbirth,” her mother said. “She should have died moments after birth.”

“They told us over 95% of patients with this diagnosis don’t survive past the first few months … and anyone who survives past that requires an enormous deal of medical care, like feeding tubes and breathing tubes,” said Bill Longhenry. “Usually they have no brain function.”

While much of her brain is missing, he said, the higher portion is “relatively intact and functioning well,” he told Fox News Digital.

“I started to get the idea that this kiddo is really trying — she’s not on the decline, she’s actually really fighting to live her life in this world.”

“It’s this combination of regenerative medicine, developmental functional neurology, and photobiomodulation that’s sparking and fueling her brain development and building neuroplasticity,” Crawford told Fox News Digital in a separate interview. 

“For example, she can clearly see and she responds to visual cues — yet she doesn’t have the majority of those visual pathways developed in her brain,” he went on. “That means her brain has rewired and remapped the ability to see, and that’s the amazing part, that the brain is able to do that.”

Related Posts

BREAKING: Tom Homan’s ICE Takes Down Over 100 Tren de Argua Gangsters in Colorado Town They Took Over

BREAKING: Tom Homan’s ICE Takes Down Over 100 Tren de Argua Gangsters in Colorado Town They Took Over

According to recent reports, Immigration and Customs Enforcement (ICE) arrested over 100 members of the criminal Tren de Aragua gang in Aurora, Colorado.  Over the past few…

WATCH: Trump Declares War on the Deep State

WATCH: Trump Declares War on the Deep State

Speaking in a powerful, mid-March speech about his plans for reform of the Department of Justice (DOJ), President Donald Trump put up his verbal fists and declared…

Arrest Warrant Exposes Sprawling Election Fraud 5 Blue State Democrats Engaged In

Arrest Warrant Exposes Sprawling Election Fraud 5 Blue State Democrats Engaged In

In a significant move for election integrity, five Connecticut Democrats have been charged for their involvement in a massive election fraud scheme. The beleaguered Democrats are alleged…

JUST IN: Tulsi Blindsides Deep State, Releases 10K Documents On RFK Assassination

JUST IN: Tulsi Blindsides Deep State, Releases 10K Documents On RFK Assassination

A trove of more than 10,000 documents about the assassination of former U.S. Sen. Robert Kennedy has begun to be released, Tulsi Gabbard announced Friday. Gabbard, President…

Longtime GOP Senator Ripped After Questioning Trump Admin Publicly

Longtime GOP Senator Ripped After Questioning Trump Admin Publicly

One of the longest-serving Republicans in the U.S. Senate is in the crosshairs of MAGA supporters after he publicly questioned the Trump administration’s rationale for revoking the…

WATCH: CNN Host Dismantles ‘Fanciful’ Narrative About Regretful Trump Voters

WATCH: CNN Host Dismantles ‘Fanciful’ Narrative About Regretful Trump Voters

CNN senior data reporter Harry Enten had bad news for Democrats who believe millions of Trump supporters are regretting their votes and are turning on the president…